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Using Case Study Betsy to Understand Down Syndrome & Dementia

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Suggested Readings / References 

Antaki, C., Finlay, W., Walton, C., & Pate, L. (2008). Offering choices to people with intellectual disabilities: an interactional study. Journal Of Intellectual Disability Research: JIDR, 52(12), 1165-1175. 

Ball, S., Holland, A., Treppner, P., Watson, P., & Huppert, F. (2008). Executive dysfunction and its association with personality and behaviour changes in the development of Alzheimer's disease in adults with Down syndrome and mild to moderate learning disabilities. British Journal Of Clinical Psychology, 47(Part 1), 1-29 

Benner, P., Sutphen, M., Leonard-Kahn, V., & Day, L. (2008). Formation and everyday ethical comportment. American Journal Of Critical Care, 17(5), 473-476. 

Blackman, N. (2008). The development of an assessment tool for the bereavement needs of people with learning disabilities. British Journal Of Learning Disabilities, 36(3), 165-170. 

Blackman, N. (2007). People with learning disabilities -- an ageing population. Journal Of Adult Protection, 9(3), 3-8. 

Blair, J. (2011). Care adjustments for people with learning disabilities in hospitals. Nursing Management - UK, 18(8), 21-24. 

Chaput, J. L. (2002). Adults with Down Syndrome and Alzheimer's Disease: Comparison of Services Received in Group Homes and in Special Care Units. Journal Of Gerontological Social Work, 38(1/2), 197-211. 

Hirst, S. (2013). Victoria has a developmental disability. Journal Of Gerontological Nursing, 39(3), 3-4. doi: 10.3928/00989134-20130130-05 Case Study of Victoria Elderly Client with DS 

Janicki, M. P. (2011). Quality outcomes in group home dementia care for adults with intellectual disabilities. Journal Of Intellectual Disability Research, 55(8), 763-776. doi: 10.1111/j.1365-2788.2011.01424.x

Janicki, M. (1998). Down's syndrome and Dementia (Book). Journal Of Intellectual Disability Research, 42(6), 513. 

Katz, S. (2006). Early intervention programme for infants with Down’s syndrome, British Journal of Nursing, 9(8), 486-492. 

Maaskant,M.,Gevers,J.,Wierda,H.(2002).Mortality and life expectancy in Dutch residential centres for individuals with intellectual disability, 1991-1995.Journal of Applied Research in Intellectual Disabilities,15,200-212. 

National Office for Alzheimer Association  www.Alz.org 

Patti, P., Amble, K., & Flory, M. (2010). Placement, relocation and end of life issues in aging adults with and without Down's syndrome: a retrospective study. Journal Of Intellectual Disability Research, 54(Part 6), 538-546 

Post, S. (2002). Down syndrome and Alzheimer disease: defining a new ethical horizon in dual diagnosis. Alzheimer's Care Quarterly, 3(3), 215-224. 

Roizen,N., Patterson,D.(2003).Down’s syndrome. The Lancet.361, 1281-89. 

Ryan,B.,Carey,E.(2008). Introducing person-centered planning: a case study. Learning and Disability Practice,11(9),12-20. 

Service, K., & Hahn, J. (2003). Issues in aging: the role of the nurse in the care of older people with intellectual and developmental disabilities. Nursing Clinics Of North America, 38(2), 291-312. 

Shoumitro,D., Hare,M.,Prior,L, Sabyasachi,B.(2007).Dementia screening questionnaire for individuals with intellectual disabilities. British Journal of Psychiatry,190, 440-444. 

Soliman, A., & Hawkins, D. (1998). Learning disabilities. The link between Down's syndrome and Alzheimer's disease: 1. British Journal Of Nursing, 7(13), 779-784. 

Soliman, A., & Hawkins, D. (1998). Clinical. The link between Down's syndrome and Alzheimer's disease: 2. British Journal Of Nursing, 7(14), 847-850. 

Strax, T.E., Luciano, L., Dunn, A.M., & Quevedo, J.P. (2010). Aging and developmental disability. Physical Medicine and Rehabilitation Clinics of North America, 21, 419- 427. doi:10.1016/j.pmr.2009.12.009

Watchman, K. (2005).Practitioner-raised issues and end-of-life care for adults with Down syndrome and dementia. Journal of Policy & Practice In Intellectual Disabilities, 2(2), 156-162. 

Whitwham, S., McBrien, J., & Broom, W. (2011). Should we refer for a dementia assessment? A checklist to help know when to be concerned about dementia in adults with Down syndrome and other intellectual disabilities. British Journal Of Learning Disabilities, 39(1), 17-21.

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